Some ramblings today —
Sometimes I just need people to validate me and my feelings. I was always taught to remind patients of reality and to keep them in reality. To tell them that they have dementia and that what they’re thinking isn’t true. Now I wonder. Is that really fair? What are we supposed to do when someone tells us that? Go in and switch the brain cells? To make the chemicals work differently in the brain? Some individuals can’t even comprehend what reality is. Why force them to accept reality? Is that approach the most psychologically uplifting? If we could always be in reality we would. Most people don’t choose to not be in reality.
None the less, we are still people. We have feelings. We still have a mind and our own pride as individuals. I think it only feels worse to us when someone says “You’re demented.” In my case, I occasionally feel as though I’m still in California and that thought makes me happy. Is it fair to tell me otherwise at that moment when I can’t understand it anyhow? There aren’t always too many good feelings in life. Why just not tell me “Yes, it does feel good to be in California” and let me enjoy it for the moment? Or, when I wake up. Sometimes I feel very good and think I can go to work. Why burst my bubble by saying “No, you’re too sick.” Let me eventually figure it out that I am not able to go to work.
Lewy Body Disease Prognosis Facts
Þ LBD is a disorder of relentless progression.
Þ The rate of progression varies, and some investigators think
that the progression is faster than that of AD.
Þ Patients eventually die from complications of immobility, poor nutrition, and swallowing difficulties.
My response to these facts……..I will try to prove them wrong. I will fight and try to not give in. I will live a long life with a good mind!
David
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