Sunday October 12, 2008

 
 
 

Don’t expect life to be fair.

 

When facing a difficult task,

act as though it is impossible to fail. 

 

Never underestimate the power of

forgiveness.

 

 

 

Background of Lewy Body Dementia

 

Frederick Lewy first described Lewy bodies (LBs), abnormal clumps protein that develop inside nerve cells of the substantia nigra in  A layer of large pigmented nerve cells in the midbrain that produce dopamine. The function of the substantia:  Controls Voluntary Movement, Produces the Neurotransmitter Dopamine and whose destruction is associated with Parkinson’s disease and Regulates Mood.

 

 

The relationship of Lewy Body Disease (LBD) and Parkinson ’s disease (PD) is an area of considerable controversy, particularly because dementia frequently occurs in PD. Many investigators believe that a spectrum of LB disorders exists.

The third report of the LBD Consortium headed by Ian McKeith discusses an arbitrary 1-year rule to distinguish LBD from PD with dementia. If Parkinsonism has been present for 12 months or longer before cognitive impairment is detected, the disorder is called PD with dementia; otherwise, it is called LBD. The report recognizes that this rule may be difficult to apply in clinical practice. When dementia precedes motor signs, particularly with visual hallucinations and episodes of reduced responsiveness, the diagnosis of LBD should be considered. LBD overlaps Parkinsonian dementias.

 

Well now. I told you in the last post about a new agent on the market for dementia! I present this info with tongue in cheek and only after serious thought and consideration. But there’s more.

 

On my recent visit with my neurologist, Oscar L. Lopez, M.D., several weeks ago, he informed me of a new chemical agent called VIVIMIND™.  He said he was very familiar with it and “you should look into it on the Internet. It’s just now being released as an OTC (Over the Counter) agent in Canada. Gosh, what was I supposed to think? I’m really not one to take just any substance which someone mentions just because ‘it’s supposed to be good’ or ‘Hey, this stuff really works.’ So, yes, I do believe in vitamins, minerals and other natural substances. But I like to make sure that I know what the substance is, what it does and to have some scientific evidence before ingesting it.

 

So here I was, leaving his office with the name of this drug written on a piece of paper. I didn’t know what to think. It this some new fad? Is this some kind of snake oil? I knew he was highly involved with dementia research, etc. as well as being affiliated with the University of Pittsburgh Medical Center’s Neurology Department. But was he really serious?? Pam and I talked about it on the way home. She felt very encouraged by it. As for me, I was the “doubting Thomas.” Yes, please excuse the pun!

 

Ok, David. At least be fair. So I did a Google search on Dr. Lopez. Gee whiz! He is very nice, warm, explains things, isn’t arrogant and snooty and he listens. And low and behold, there were hundreds of links for him! He definitely is more modest than one would ever expect.

 

All right then. Maybe I should take this a bit more seriously. I came home and looked up the Vivimind stuff of which I am showing some info a few lines below in this blog. After much discussion with my wife, a couple friend of ours and with me, I came to this conclusion. It could be nothing and if I get it I’d be spending a lot of $$$ on nothing. But if I don’t get it, I’ll always wonder later on down the road why I didn’t get it. Maybe it’ll prove to be something over the next few years. Maybe it’ll give me many more years with a better mind. After all, I’m taking Aricept and Namenda. Each of them has a different mechanism of action which works well when taken in combination. It sounds like the Vivimind could function in yet a 3rd way. But I vacillated day after day until I knew I had to make some kind of a decision.

 

The 180 mile trek to Niagara Falls is the closest part of Canada to us; I called some pharmacies there and asked one of them to hold the Vivimind for me. We decided to make a ‘day trip’ and left on Friday, October 10, 2008 with Pam’s friend, Darlene. Thanks to Lewy Land, I FORGOT to print out a map from MapQuest to the pharmacy. Needless to say we got lost and were able to see some beautiful scenery along the way. Any my bladder was about to give way. We were near some trees so………….let your imagination take over at this point. I guess Pam and Darlene got a real laugh as I was trying to walk fast — they said between my balance and gait problems and trying to hold things in, I looked like a ‘contorted’ person which would scare most people away. We need to use humor with this disease. All I could think of was “Oh God. I don’t want to get arrested in a foreign country. Please don’t let any police drive by!”

 

After getting some directions, we finally found the pharmacy and bought some of this ‘magic potion.’ And then left to visit the Falls.

 

 

 

Panorfamic View of the Falls

 

Panoramic View of the Falls

 

 

Rainbow on the American Side of the Falls

 

  The Rainbow Looking at the American Side of the Falls

 

 

 

 

Pam & Me

 

Niagara Falls with Autumn Foliage

 

The Falls with Some Autumn Foliage

 

We left and of course got tied up during the rush hour Buffalo, NY traffic. We arrived in Erie, PA and met Darlene’s husband for dinner.

 

We came home and went straight to bed…..fatigued to the max. So I took Saturday off from writing on the blog. I took the first Vivimind pill on Saturday morning. I will gradually increase the dose slowly with Dr. Lopez’ guidance.

 

 

 

  

  Vivimind

 

After hundreds of millions of dollars invested and 15 years of rigorous scientific research, including clinical testing with over 2,000 individuals1 in 68 European, 50 U.S. and 17 Canadian medical centers, VIVIMIND is now available for consumers.

Welcome to a new generation of memory protection. For an aging population, VIVIMIND™ represents a breakthrough in one of the key consequences of getting older – memory loss. VIVIMIND™ is a science-based natural health product that has been shown to protect memory function based on the naturally occurring ingredient, homotaurine.

 

Dr. David 

 
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3 Responses

  1. Oh, c’mon, David. We did NOT exactly say you looked “contorted” as you made your mad urinary dash for the shelter of the trees. But we did note that a young couple in the vicinity quickly got into their car and drove away… Important note — those were CANADIAN trees and we did have a little concern that perhaps you would be incarcerated in Canada, leaving Pam and me to wander aimlessly because WE HAD NO MAP!!

  2. This is my first time to try t type here so I hope this will get to you…My husband was just diagnosed after a half of being told such bs that it is just to to much to even try to write….I have been reading all I can now that we have a name for all of this…you are the closest post that I have found to us if it is only 180 miles to the beautiful falls. We live in Butler, Pa. and when you spoke of a Doctor in Pittsburg I was thriled as we had to go to the Cleveland Clinic to finally find a Dr. who could think outside of the box…. and look at Dick’s condition and listen to me. I hope you or someone could tell me are breathing problems consistant with thi LBD ? Dick paces and is up and down and up and down complaiing that he feels like he is not getting enough air…Our house is cool and I am bundled in a sweater as he complaines that it is to hot …could you tell me if this is common or not to LBD…Ty Julie

  3. Hi Julie………..thank you for posting your comment.

    Yes, Pittsburgh has many good Drs specializing in the treatment and care of dementia.

    Feeling too hot or too cold is a common symptom of LBD especially feeling too hot. I have it. I am sweaty even in the winter while my wife has to wear extra clothing. Especially difficult for me in the summer heat!

    As far as breathing problems, I am not aware of this but I suppose it could be since breathing is controlled by the autonomic nervous system just like temperature regulation.

    Voice strength and hoarseness is a common problem as well.

    So, I think it’s best to check with the Dr. about the breating to make sure it isn’t something else which should be treated.

    David

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