Friday October 24, 2008

Bizarre. Yes, dreams can be. Last night I dreamed that I was ‘somewhere’ with a bunch of people. During the gathering, I had a moment of severe confusion and disorientation. It lasted for a long long time in the dream. Now that’s a new type of dream I’ve never experienced before. Go figure.

I’m getting weary of all the political ads. Can’t wait until Election Day is over. Seems like it’s been a long drawn out affair. I’m sure most people have already decided so let’s get it over with. Have been watching MSNBC, CNN, etc. The anchor folks so to have run out of things to say. They’re now down to what kind of clothes people are wearing and how much they cost! Aren’t there more important things in life?

We’re having friends (Margo and Stein) visit us from Pittsburgh tomorrow. They are dear and closer to us than some family members. Funny how ya can choose your friends but not your family! It’ll be a very nice day in spite of the rainy forecast for the weekend. Stein is so witty I don’t know if I’ll be able to keep up with him. Margo’s brother-in-law is suffering from Alzheimer’s disease. I think he’s also on Namenda and Aricept.

Speaking of that. I’m really noticing a positive difference since adding the Namenda to the Aricept. My sleeping pattern had been terrible for the past 3-4 years. I noticed an improvement after taking the Namenda for about 4-5 weeks. Am sleeping better than ever right now. And the Vivimind. That’ll take awhile. Am taking 10-mg daily for 1 month and then I’ll increase it to 2 tabs/day. My understanding of it is that it’ll take much longer to notice any results. Fortunately, I haven’t had any side-effects from any of the 3 of them.

I spoke with Angela Taylor this week. She’s the Chair of the Science Committee and on the Board of Directors of the Lewy Body Dementia Association (LBDA).  What a lovely, caring and smart lady! How lucky we all are with her running the ship. Thank you, Angela, for your interest. You perked me up and encouraged me and you didn’t even know it.

Am looking forward to reading Dr. Tom Grayboys’ book – Life in the Balance. I put in a request to the birthday fairy. She’s coming soon.

I just discovered a new game called KenKen. Never heard of it before. Haven’t tried it yet but it sounds like it’ll be another way of working the brain.

OK, David. Give the computer a rest and do something else today. It’ll stimulate your brain.



5 Responses

  1. Question — David, I visited my mom and dad today and have been noticing that my dad seems more confused than usual. My mom said he is also getting quite forgetful, e.g., she asks him to go get something in the next room and he comes back with something entirely different. I’m calling the gerontologist, of course, since he’s on the same dosage of Aricept as he received initially 14 months ago. But what do you think about Vivimind?

  2. Darlene…you raise a good point. I think it’s good that you’re having the gerontologist involved with your father’s care. I certainly cannot give you any medical advice other than to suggest that you speak with his physician and discuss the dosage of Aricept along with possibly adding other agents such as Namenda, Vivimind, etc. His Dr. will know best. There is a website which discusses Vivimind @


  3. David, it was equally my pleasure to speak with you this week! Your blog is a wonderful resource of information and inspiration, and I have become a dedicated fan in a very short time.

    Thank you for the compliments! While my role this year is in leading our efforts to deliver more trusted informatiom on LBD, I am just one of the many dedicated people at LBDA… Every single person there is a living testament to what one person can do to make a difference in the world. And YOU are now among the growing list of people who are raising the visiblity of LBD and our understanding of its dramatic impact on the lives of LBD families.

    To learn more about LBDA, your readers can visit us at We are increasing knowledge, sharing experience and building hope through our mission of LBD outreach, education and research.

    We provide outreach to families through our website, Caregiver Helpline, local support groups, and online community for LBD families.

    Under the guidance of our internationally recognized Scientific Advisory Council, we develop scientifically-sound educational resources for families and medical/caring professionals. (It’s great to see that you’ve listed a number of LBDA’s publications on your site!)

    And we are encouraging research through the efforts of our Scientific Advisory Council. Together, we are planning a scientific conference on LBD biomarkers and are presenting the results of our LBD Caregiver Burden Assessment survey at national and international medical conferences.

    I look forward to getting to know you better and reading your remakrable blog. Keep up the great work!


  4. David, those of us standing beside our Lewy loved ones appreciate your blog more than one can say in a little box. I am pleased you have been in contact with Angela Taylor..she was one of the first people I “met” when wading through the Internet in seach of LBD info..that was in 2003, I believe.

    I will be giving a talk at the MIND Symposium in Boston on November 5th. Our Carmen Foundation has issued a Challenge Grant to raise funds for their research projects. We also support the LBDA and MJ Fox Foundation..and due to the fact that so many people STILL have not heard of LBD, we fund educational programs here in Bend, Or, where we moved in 2007. Private philanthropy is one of the few ways “civilians” can participate in neurological research.

    I am hoping to meet with Tom Graboys while in Boston. His book has had great impact on the Lewy World.

    blessings, Marjorie Carmen/The Carmen Foundation (committed to 21st Century Neurological Research and Solutions)

  5. Dear David,

    Having dementia myself, I do relate to that issue of being confused in my dreams. In nearly all of my dreams, I am confused or
    disoriented at some point of the dream, and the rest of the dream is spent trying to figure out where I am, or who I am with, or what was the purpose of the meeting, etc. This seems monstrously unfair — that we get no break from dementia. Remember the good old days when we used to dream of flying,
    or breathing while underwater swimming? I used to love that one. I could go see the fish along a coral reef without bothering with a tank or a snorkel.

    These days, I would dream of being lost while trying to find my way back to land.

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