The hidden side of Lewy Body Dementia. I am going to try to explain a little bit of what I felt last week when a had a relapse. First of all, I want to thank my sweetheart for helping me through. She was so kind, patient and loving throughout those bad days. What’s interesting is this. Even though I don’t remember much and was confused, inside I was very concerned about Pam and how it was affecting her. It was as though my soul, my personality or the unconscious part of my mind was tuned into the fact that something was not right. I tried to make it easy for her and tried to protect her — but not consciously aware of it. I wouldn’t have been able to verbalize that at the time, but I somehow was able to feel and know this. I am grateful to have experienced this strange phenomena. To all those special and loving caregivers, I think this sends a strong message. Even though you loved one may be demented, confused, out of it, etc., on some level I believe they feel/know something. They just can’t express their love and appreciation the way they used to do with you. They still love you and have special feelings toward you.
June Christensen from the LBDcaregivers group on Yahoo shared the following list on her recent email: “Hospitalization Happens: A Guide to Hospital Visits for Individuals with Memory Loss” I found it to be quite helpful. I saved the pdf file so that Pam can read it. So, take a look at it. Very informative.
Congratulations to Pam in NW PA who was the only person to post the correct answer to the logic puzzle which I blogged on last week. You rock!
Word of the Day for Friday, February 6, 2009
erstwhile \URST-hwahyl\, adjective, adverb; Also used as an adverb, meaning formerly or former. An example would be: “Before I move, I will tell off my erstwhile friends.”
Did you know? The optimum relative humidity level is generally considered to be between 40% and 50%. Anywhere between 30% and 60% is acceptable, and but a figure below 50% is recommended to help control dust mites which are bad for allergy sufferers.
Blogging to do list:
- Post on delusions and hallucinations
- Do book review on “Could it be Dementia“
- Do book review on “Behind the Mask“
- Do book review on “Living with Lewys“
- Reply to Elderly Lady in Training’s comment posted on 1-31-2009
- Reply to Imogene’s comment posted on 2-5-2009
A great weekend to all!