Dear Dr. Have you tried the coconut oil Dr. Mary Newport has described as a miracle treatment for her husband? Do you take fish oil (three or more caps per day)? Do you take testosterone replacement (skin gel)? Do you take selegiline or rasagiline? What if any vitamins and other supplements do you take? It is not completely clear to me how you were diagnosed. Was it based on an MRI coupled with some behavioral and subjective changes?
My father died in his eighties of combined LBD and Alzheimer’s disease and I am trying not to follow his example.
Hi Dr. Fisher……………No, I have not tried the coconut oil. I need to study more about it. I am on Aricept 10-mg daily, Namenda 10-mg twice daily, 9 capsules of double strength fish oil, testosterone replacement therapy along with trazodone (for sleep). I take multivitamins, calcium and magnesium supplements along with vitamin D and B-complex daily. When I think about it, I take a vitamin E capsule as well. I’ve not gone overboard with all that’s recommended out there. Ah, yes. I do like my coffee in the morning and the good old home made iced tea!
I am now on a steady plateau with the above combination and am permitted to drive as long as I have a co-pilot with me. I’ve noticed the biggest difference since adding the Namenda to my regimen. I do find I slip backwards if I don’t use the testosterone replacement therapy. I’d love to be able to practice medicine again but have not totally come back to my base level. I still have enough deficits to keep me from totally functioning normally. I do well with regular activities of daily living as long as there is little pressure. Hobbies, crafts, gardening, TV, etc. Short term memory and immediate recall are still some problems for me as well as word finding difficulties.
I was diagnosed at the University of California, San Francisco’s Memory Clinic after being hospitalized for the entire evaluation. I following an LBD expert neurologist in Pittsburgh, PA. Pet scans of the brain have also shown the pathological changes as well.
I’ve never specifically been treated for my Parkinsonian symptoms. Azilect would certainly be something to discuss with my neurologist. During my last visit, he did mention starting an anti-Parkinsonian agent but I would like to hold off on that as long as possible.
Hope this helps……
Filed under: Caregivers for Individuals with Dementia, Dementia, Lewy Body Dementia Tagged: | Alzheimer’s disease, Azilect, coconut oil, Dr. Mary Newport, fish oil, LBD, Lewy Body Dementia, selegiline, testosterone replacement therapy