To CAREGIVERS — Live Webinar: Betwixt and Intermixed—Dementia With Lewy Bodies

Friends,

I wanted to pass along an exciting announcement about an upcoming webinar on dementia with Lewy bodies, by the Alzheimer’s Research Forum.  This is free to the public, so please pass the word!

Live Webinar: Betwixt and Intermixed—Dementia With Lewy Bodies

http://www.alzforum.org/../../images/spacer.gif

By some estimates, some one to two million people in the U.S. alone are suffering from dementia with Lewy bodies (DLB), a disease that combines features of AD and of PD with additional symptoms that arise from their combined protein pathologies. All this adds up to a double whammy of a neurodegenerative disease, and researchers from both AD and PD proper are developing an active interest to understand it, diagnose it better and earlier, and find molecular or imaging biomarkers. Join DLB experts Ian McKeith, Brit Mollenhauer, James Galvin, James Leverenz, and Walter Schulz-Schaeffer for a discussion of the large and often overlooked overlap between Alzheimer and Parkinson diseases. Join us on Monday, 15 June 2009, noon to 1 p.m. EST for this Webinar on dementia with Lewy bodies.

Thanks,

Angela Taylor

LBDA

New Year’s Eve and HOPE

First of all, I am not at all offended by the recent comments from Miranda. Bless you Imogene for trying to protect me. I openly welcome all opinions and comments. I don’t intend this blog to be about who is right or wrong. So, Miranda, you do not need to apologize for expressing your opinions. I personally think that both of you are right in your own way. All opinions cause us to stop and think about how others view their world. I find it very enlightening and educational. Sometimes, just being quiet and listening to other people is worth a college education! So keep your comments coming along.

There was a post on the LBD Caregivers Yahoo Group today about Final Wishes Planner. I was pleasantly surprised to look at the website — very helpful, indeed. I plan to print it out for both Pam and me. I’d highly recommend it for anyone. It never hurts to have things written out in advance. If an emergency happens, the planner has done all the work for us ahead of time!

So New Year’s Eve is here. It’s interesting how we celebrate the passage of time. The New Year, birthdays, the “time is money concept, etc.” Basically, tomorrow is simply another day as time continues to pass.

But many of us tend to fret and worry over time and tend to lose hope. We find ourselves trying to muster up hope for the future. But this is human hope. That kind of hope is in limited quantity, and when it runs out, you are left drained, discouraged, disappointed and …hopeless! It may masquerade as “hope,” but it is completely different from the hope that God provides. God’s hope renews and refreshes. It empowers, uplifts, and strengthens. God’s hope does not disappoint! There is an unlimited supply of God’s hope.

“Father, You are the God of all wonderful, everlasting hope. Your Word tells us that those who hope in You will renew their strength. They will soar on wings like eagles; they will run and not grow weary, and they will walk and not be faint. Please help me always put my hope in You and You alone. Thank You that with You all things are possible. I pray that all will place their HOPE in You and You alone …”

Warmly………..David Thomas

Friday October 17, 2008

Wouln’t you know it…

 

Brain cells come and brain cells go, but FAT cells

 

live forever. How fair is that??

 

 Some musings…..

  

1.       I would like to acknowledge the following Yahoo Groups (in random order):

 

 

2.         I may have missed some Yahoo Groups dedicated to dementia related issues. Please let me know if there are more.

 

3.       My prayers, thoughts, empathy and concerns go out to anyone faced with difficult situations with their loved ones. I see so many posts on the Groups and I just don’t know what to say or do. I feel so helpless. There are so many that I find myself not responding to them. Maybe this is my way of saying it to everyone publicly at the same time. Regardless of the group, we all have the same concerns and issues in common.

 

4.       LET’S PLAY!! I’ve been doing some net surfing on brain exercises. Here are some sites I found of interest. I’d eventually like to add a page to the blog focusing on just these types of sites. Brain training, teasers, exercises, etc.

 

http://www.braingle.com/

http://puzzles.about.com/

http://www.brainmetrix.com/

http://litemind.com/boost-brain-power/

http://tinyurl.com/58bjvb

http://www.queendom.com/tests/testscontrol.htm?t=3

http://www.miniclip.com/games/en/brain-training.php

http://matica.com/free-flash-games/2/Brain-Gym.html

http://www.brainwaves.com/puzzle-home.html

http://www.thirdage.com/games

http://www.jigzone.com/

http://www.novelgames.com

 

 

5.       And, speaking of puzzles. Chad and I have a date tonight to play bingo. Depending on how Pam feels, she may join us. I never thought that I’d see the day that I would look forward to going to bingo. At first, I had a very hard time playing the cards. My mind just didn’t want to cooperate. But I can now play up to 12 cards at a time with few mistakes. Maybe someday I can play 24-36 cards like the other players. Oh well.

 

6.       AND, the votes and comments from yesterday’s blog on whether we should keep victims of dementia in ‘reality.’ First, I realized after it was too late that I had 2 questions embedded into one on the very first option. Sorry. My fault. That kept some people from voting. I’ll work on that one if I do a vote again. The comments were very thought provoking. Perception is reality, that’s for sure. Even though it is a very complex question/issue, I kinda really did intend to keep it simplistic. However, thanks to Carole M.’s post, “I cannot believe I am going to admonish a psychiatrist, but I am.  PLEASE do not over simply such a complex issue.  In the future, I, for one, will rely on you to challenge ANY either/or thinking with regard to working with people with dementia.” Thanks, Carole. You made an excellent point. I found every comment to be of value. Some people made some points that I hadn’t even thought of. The simple point which I missed — if someone is in a different reality which could cause harm to themselves or to others. I guess I was only thinking of when I go into a little ‘happy blissful’ moment. I forget that there are times when Pam does need to remind me of something which could get me into trouble. Such as when I think I’m going to walk to the store. In my mind, I think it’s only 2 blocks away as it once was. Now it’s several miles away. Thanks, Pam.

 

David

 

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