Friday October 24, 2008

Bizarre. Yes, dreams can be. Last night I dreamed that I was ‘somewhere’ with a bunch of people. During the gathering, I had a moment of severe confusion and disorientation. It lasted for a long long time in the dream. Now that’s a new type of dream I’ve never experienced before. Go figure.

I’m getting weary of all the political ads. Can’t wait until Election Day is over. Seems like it’s been a long drawn out affair. I’m sure most people have already decided so let’s get it over with. Have been watching MSNBC, CNN, etc. The anchor folks so to have run out of things to say. They’re now down to what kind of clothes people are wearing and how much they cost! Aren’t there more important things in life?

We’re having friends (Margo and Stein) visit us from Pittsburgh tomorrow. They are dear and closer to us than some family members. Funny how ya can choose your friends but not your family! It’ll be a very nice day in spite of the rainy forecast for the weekend. Stein is so witty I don’t know if I’ll be able to keep up with him. Margo’s brother-in-law is suffering from Alzheimer’s disease. I think he’s also on Namenda and Aricept.

Speaking of that. I’m really noticing a positive difference since adding the Namenda to the Aricept. My sleeping pattern had been terrible for the past 3-4 years. I noticed an improvement after taking the Namenda for about 4-5 weeks. Am sleeping better than ever right now. And the Vivimind. That’ll take awhile. Am taking 10-mg daily for 1 month and then I’ll increase it to 2 tabs/day. My understanding of it is that it’ll take much longer to notice any results. Fortunately, I haven’t had any side-effects from any of the 3 of them.

I spoke with Angela Taylor this week. She’s the Chair of the Science Committee and on the Board of Directors of the Lewy Body Dementia Association (LBDA).  What a lovely, caring and smart lady! How lucky we all are with her running the ship. Thank you, Angela, for your interest. You perked me up and encouraged me and you didn’t even know it.

Am looking forward to reading Dr. Tom Grayboys’ book – Life in the Balance. I put in a request to the birthday fairy. She’s coming soon.

I just discovered a new game called KenKen. Never heard of it before. Haven’t tried it yet but it sounds like it’ll be another way of working the brain.

OK, David. Give the computer a rest and do something else today. It’ll stimulate your brain.

David

Sunday October 12, 2008

 
 
 

Don’t expect life to be fair.

 

When facing a difficult task,

act as though it is impossible to fail. 

 

Never underestimate the power of

forgiveness.

 

 

 

Background of Lewy Body Dementia

 

Frederick Lewy first described Lewy bodies (LBs), abnormal clumps protein that develop inside nerve cells of the substantia nigra in  A layer of large pigmented nerve cells in the midbrain that produce dopamine. The function of the substantia:  Controls Voluntary Movement, Produces the Neurotransmitter Dopamine and whose destruction is associated with Parkinson’s disease and Regulates Mood.

 

 

The relationship of Lewy Body Disease (LBD) and Parkinson ’s disease (PD) is an area of considerable controversy, particularly because dementia frequently occurs in PD. Many investigators believe that a spectrum of LB disorders exists.

The third report of the LBD Consortium headed by Ian McKeith discusses an arbitrary 1-year rule to distinguish LBD from PD with dementia. If Parkinsonism has been present for 12 months or longer before cognitive impairment is detected, the disorder is called PD with dementia; otherwise, it is called LBD. The report recognizes that this rule may be difficult to apply in clinical practice. When dementia precedes motor signs, particularly with visual hallucinations and episodes of reduced responsiveness, the diagnosis of LBD should be considered. LBD overlaps Parkinsonian dementias.

 

Well now. I told you in the last post about a new agent on the market for dementia! I present this info with tongue in cheek and only after serious thought and consideration. But there’s more.

 

On my recent visit with my neurologist, Oscar L. Lopez, M.D., several weeks ago, he informed me of a new chemical agent called VIVIMIND™.  He said he was very familiar with it and “you should look into it on the Internet. It’s just now being released as an OTC (Over the Counter) agent in Canada. Gosh, what was I supposed to think? I’m really not one to take just any substance which someone mentions just because ‘it’s supposed to be good’ or ‘Hey, this stuff really works.’ So, yes, I do believe in vitamins, minerals and other natural substances. But I like to make sure that I know what the substance is, what it does and to have some scientific evidence before ingesting it.

 

So here I was, leaving his office with the name of this drug written on a piece of paper. I didn’t know what to think. It this some new fad? Is this some kind of snake oil? I knew he was highly involved with dementia research, etc. as well as being affiliated with the University of Pittsburgh Medical Center’s Neurology Department. But was he really serious?? Pam and I talked about it on the way home. She felt very encouraged by it. As for me, I was the “doubting Thomas.” Yes, please excuse the pun!

 

Ok, David. At least be fair. So I did a Google search on Dr. Lopez. Gee whiz! He is very nice, warm, explains things, isn’t arrogant and snooty and he listens. And low and behold, there were hundreds of links for him! He definitely is more modest than one would ever expect.

 

All right then. Maybe I should take this a bit more seriously. I came home and looked up the Vivimind stuff of which I am showing some info a few lines below in this blog. After much discussion with my wife, a couple friend of ours and with me, I came to this conclusion. It could be nothing and if I get it I’d be spending a lot of $$$ on nothing. But if I don’t get it, I’ll always wonder later on down the road why I didn’t get it. Maybe it’ll prove to be something over the next few years. Maybe it’ll give me many more years with a better mind. After all, I’m taking Aricept and Namenda. Each of them has a different mechanism of action which works well when taken in combination. It sounds like the Vivimind could function in yet a 3rd way. But I vacillated day after day until I knew I had to make some kind of a decision.

 

The 180 mile trek to Niagara Falls is the closest part of Canada to us; I called some pharmacies there and asked one of them to hold the Vivimind for me. We decided to make a ‘day trip’ and left on Friday, October 10, 2008 with Pam’s friend, Darlene. Thanks to Lewy Land, I FORGOT to print out a map from MapQuest to the pharmacy. Needless to say we got lost and were able to see some beautiful scenery along the way. Any my bladder was about to give way. We were near some trees so………….let your imagination take over at this point. I guess Pam and Darlene got a real laugh as I was trying to walk fast — they said between my balance and gait problems and trying to hold things in, I looked like a ‘contorted’ person which would scare most people away. We need to use humor with this disease. All I could think of was “Oh God. I don’t want to get arrested in a foreign country. Please don’t let any police drive by!”

 

After getting some directions, we finally found the pharmacy and bought some of this ‘magic potion.’ And then left to visit the Falls.

 

 

 

Panorfamic View of the Falls

 

Panoramic View of the Falls

 

 

Rainbow on the American Side of the Falls

 

  The Rainbow Looking at the American Side of the Falls

 

 

 

 

Pam & Me

 

Niagara Falls with Autumn Foliage

 

The Falls with Some Autumn Foliage

 

We left and of course got tied up during the rush hour Buffalo, NY traffic. We arrived in Erie, PA and met Darlene’s husband for dinner.

 

We came home and went straight to bed…..fatigued to the max. So I took Saturday off from writing on the blog. I took the first Vivimind pill on Saturday morning. I will gradually increase the dose slowly with Dr. Lopez’ guidance.

 

 

 

  

  Vivimind

 

After hundreds of millions of dollars invested and 15 years of rigorous scientific research, including clinical testing with over 2,000 individuals1 in 68 European, 50 U.S. and 17 Canadian medical centers, VIVIMIND is now available for consumers.

Welcome to a new generation of memory protection. For an aging population, VIVIMIND™ represents a breakthrough in one of the key consequences of getting older – memory loss. VIVIMIND™ is a science-based natural health product that has been shown to protect memory function based on the naturally occurring ingredient, homotaurine.

 

Dr. David 

 
%d bloggers like this: